About Children’s Brain Tumor Foundation
The Children’s Brain Tumor Foundation is a non-profit organization founded in 1988 by dedicated parents, physicians and friends. Their mission is to improve the treatment, quality of life and long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.
Knowledge is critical for families to access expert care and ensure quality of life. Their free publication A Resource Guide for Parents of Children with Brain and Spinal Cord Tumors is now on its fourth edition. This resource is full of practical information to sort through the complexities of medical procedures, interruptions to school and social life, and uncertainty about the future. CBTF also co-sponsors conferences to provide families, survivors and health care professionals the latest research, treatments and strategies for moving forward.
Support and Advocacy
When information and community resources are shared, families and young survivors find ways of adapting and then improving their lives. CBTF offers a toll-free support line that connects directly to trained pediatric neuro-oncology social workers. Programs like CBTF’s Family 2 Family Network allow families to share their experiences with other families experiencing similar dilemmas. Parents become stronger advocates for their children, and survivors become stronger advocates for themselves.
Research effective treatments of brain tumors in children
Only through scientific research will we identify the causes of, and effective treatments for brain tumors in children. CBTF funds cutting-edge research done by respected scientists at top academic medical centers nationwide. Their continued dedication and resultant discoveries hold the promise of improving the lives of affected children today, and discovering the means of prevention for future generations.
CBTF has awarded over $5 million in grants for basic and clinical research related to pediatric brain and spinal cord tumors. Also, over $625,000 has been given out in Quality of Life Grants.